My Six Favourite Recovery Stories from CFS/ME. Yep, it’s possible.

Borat_Great_Success

 The Good News

Yes. There are people that have fully recovered from CFS/ME. Read that sentence again if you need to. 101 times if necessary. Then write it on a blackboard like Bart Simpson at the beginning of every Simpsons episode until either your hand cramps or you need a lie down. Whatever comes first.

The Slightly Frustrating News

The only catch is everyone seems to have recovered in a different way. Though there are similarities it appears everyone’s bodies are uniquely individual and when faced with CFS we must each find our own path to recovery. The stories below illustrate that there is definitely ‘more than one way to skin an organic, biodynamic, fair trade mango’. I think that’s how the saying goes anyway.

The Inspiring News

What is most interesting to me is the common thread that links each of these recovery stories. It seems to be a long term commitment to experimentation, persistence and hard work. I felt tremendously inspired researching these stories and it has renewed my unwavering commitment to learn and enact all I can to maximise my chances of recovery. If they can do it, why not us as well?

Recovery Case 1. ‘The Sports Man’ – Alastair Lynch

 

The Sportsman

The Sportsman

The Man: Alastair Lynch’s recovery story is probably my favourite. Here is a guy that was at the top of his sport when he’s confronted with CFS/ME and forced to completely reconfigure his life. Amidst the pressures of his life as professional sportsman he makes a long, slow and steady comeback to go on and win 3 consecutive premiership medals. This guy is one tough and committed hombre.

How it Began: After a turbulent few years involving a car crash, a death in the family and a big weekend drinking he came down with viral symptoms and his dance with CFS/ME began.

How he recovered: Strict dietary changes (high fruit, low sugar, high water, no alcohol). Nutritional & antioxidant supplementation. Paced exercise overseen by his doctor.

How long it took him: 1994 to 2003 – 8 years.

To what level he recovered: ‘And as long as I look after myself, I’m pretty much back to normal these days.’ That means playing high intensity full contact professional sport. ‘I’ve been patient and I’ve worked very, very hard.’

Further info: You can read more about his story in his book Taking Nothing For Granted. While it’s a short and interesting read there isn’t actually all that much information on his specific recovery tactics. Alastair reckons that along side a number of other strategies this multivitamin supplement helped him get back on his feet. I’ve checked it out and it seems to be a fairly comprehensive synthetic mixture that appears to be available in Australia.

 

Recovery Case 2. ‘The Lady’- Clare Kerr

The Woman: Clare Kerr struggled for a long time with her illness before finally getting diagnosed. She seems to have a go get attitude which probably set the conditions for CFS/ME but also helped her persevere to find a way to get better. Her Doctors in the UK appear to have been crucial in her road to recovery.

The ‘Lady’.

How it began: Glandular Fever while at boarding school leading into CFS/ME.

How she recovered: With help from Dr Jean Monro from the Breakspear hospital in the UK Clare used a strategy of targeted vitamin and mineral supplements to strengthen the immune system. It seems this wasn’t just about reaching for the old jar of multivitamin’s. From what I gather Breakspear conduct extensive testing and tailor individual programs from their results.

The holistic and mindful approach seems to have also played a key part for Clare. ‘I have learnt that to be well, I have to put in as much as I want to get out. I practise yoga and meditation daily and stick to a healthy diet high in protein and vegetables. I don’t drink or smoke and I take a daily cocktail of vitamin and mineral supplements to strengthen my immune system. It’s little price to pay for having both feet firmly back in the world once again, doing all the things I was unable to do for so long.’

How long it took her: 1996- 2003 – 7 years.

To what level she recovered: ‘Since then, my health has improved steadily. Relapses are rare and are usually linked to a momentary lapse when I let myself become stressed or eat some of the few foods I’m allergic to.’ ‘I have learnt that to be well, I have to put in as much as I want to get out.’

Further info: Here is a link to an article from The Times detailing Clares recovery story.

 

Recovery Case 3. The Doctor – Bruce Campbell

The Doctor.

The Man: Bruce Campbell is a Phd graduate from California who before becoming unwell himself had experience running self help programs for people with chronic illness. So he was perfectly positioned (with knowledge and finance) to pull out all the stops and go on to recover. His story is unique in that he adopted a strategy of self treatment involving frequent rests, minimal activity and without a dependence on prescriptions or supplements.

How it Began: Bruce had a sudden onset of CFS/ME in 1997 though the exact cause is unknown.

How he recovered: Using only lifestyle change – ‘listening to my body and adapting my life to its needs. No supplements and no medications. A key aspect of this were his scheduled rests – ‘Over time, I came to believe that my scheduled rest was the most important thing I did to aid my recovery’.

How long it took him: 1997 to 2001. 5 Years.

To what level he recovered: ‘I gradually returned to the same level of health I had before becoming sick and have remained healthy now (2009) for eight years’

Further info: You can read more about Bruces story and strategies here and  learn about the organisation he founded to share his tools here.

Recovery Case 4. ‘The Therapist’ – Alex Howard

 

The Therapist.

The Man: Alex is a most inspiring individual. He took his CFS/ME by the horns and used it to fuel a process of extreme personal growth, which not only resulted in his recovery but also saw the birth of the Optimum Health Clinic, a practice based in the UK which is dedicated to helping people around the world to recover from chronic illness. His case of CFS/ME sounded quite similar to mine and he was around the same age when he became unwell so I drew extra hope and determination hearing his story.

How it Began: When Alex was 15 he woke up with feeling unwell thinking he had a flu. So began his adventure with CFS/ME.

How he recovered: After an epic journey of self education Alex recovered using nutrition, psychology, meditation, yoga and diet.

How long it took him: 7 years.

To what level he recovered: He is currently managing and expanding a busy health clinic in London and raising a young child. In other words. He’s 100%.

Further info: Here is a link to a video of Alex detailing his recovery journey. You can also read the story in his book Why ME which I really recommend for a boost of inspiration.

 

Recovery Case 5. ‘The Big Comeback’ – Mike Dessin

                  

The Man: Mike is like the Rocky of the CFS/ME recovery world. He was down and out. Nobody would listen. But then he found the trainer (Doctor) and went on to win heavyweight gold. A miraculous recovery. I have mega respect for this guy.

How it Began: Mike had nagging symptoms for 12 years after a serious ‘flu’ but managed to live well and hide his medical issues from the world. But then in 2006 the heavy weight symptoms kicked in and his comeback journey began.

How he recovered: Finding the right doctor who went the whole nine yards with him. Using a special form of Neural Therapy, detoxing and supplementing to target viruses in the body and rebuild the immune system.

How long it took him: Around 4 years until he found the doctor that would help him who it seems needed less than 12 months to get him back on his feet.

To what level he recovered: ‘I’m living at about 90% functionally. It’s a normal life, but I have some limitations…. People are so sick that they don’t have hope. What I want people to know is that it’s possible to come back from any stage of this illness. It doesn’t matter how damaged their heart and their brain are. They can still come back. I’ve seen it. I’ve been there. They may not be able to come back to 100%, but they can come back to 80 or 90%. People should really know that’

Further infoThe Mike Dessin Story (skip to the end for summary by Cort Johnson if it’s too long for you to handle). And some more updates from himself and two others who recovered in similar fashions on his progress here. These stories are dense and difficult to absorb in one go so take your time and avoid bringing on the brain fog.

 

Recovery Case 6. ‘The Olympian’ – Anna Hemmings

The Olympian.

The Woman: Anna is an Olympic Canoeist from the UK.

How it Began: After living life as a type A personality overly focused on achieving  she experienced sudden onset exhaustion that wouldn’t go away. It seems Anna had joined the CFS/ME conga line.

How she recovered: Anna had one on one sessions with Dr John Eaton and for her it did the trick. He has developed a psychological treatment for CFS/ME called Reverse Therapy which is designed to clear any emotional blockages, calm the physiological system and return it to health.

How long it took her: Lucky for Anna that her recovery path was relatively short, lasting around 2 years.

To what level she recovered: A seemingly complete recovery seeing her go on to win canoeing championships.

Further info: A newspaper interview with Anna can be found here. She is also profiled in the Alexandra Bartons book Recovery from CFS: 50 Personal Stories.

So what does this all mean for me?

Basically these stories show once and for all that it’s possible to recover from CFS/ME. You just need a bit of time, a bit of patience and a lot of courage and determination. But hey, I believe in you, even if you don’t sometimes!

I’ve found it’s useful to read these stories again and again so that the concept that in fact recovery is possible sinks deep into your subconscious mind.It seems there are many different roads to recovery so do your research, experiment, listen to your intuition and above all be gentle with yourself.

I’ll race you to the finish line of Good Health!!….Slowly and cautiously of course taking adequate breaks and pacing along the way.

 

Got a recovery story you’d care to share?

Leave a comment below and brighten up someones day.

Where to Next?

Get the low down on the Art of Napping.

Or even better. Forget about all this CFS/ME stuff for a while, grab the nearest living creature and dance uncontrollably around your room (or bed) to this classic from Marvin Gaye!

 

38 Responses to My Six Favourite Recovery Stories from CFS/ME. Yep, it’s possible.
  1. Dr Cheryl Lassen
    December 23, 2011 | 12:17 pm

    I fully believe in all the 7 steps you have mentioned, Joe. Thanks for putting this so eloquently for the benefit of others. My story began on 3 Jan 2011, Wow, I can’t believe it is almost a year gone by. Come on 2012…

    Im a young female doctor and one day, 3 Jan 2011, I had a horrible flu, within the next few weeks I am diagnosed with CFS/ME. For me, I was lucky to have the medical knowledge to know that something just was not right and after crashing a few times, from post exertional fatigue and a host of other symptoms, because we believe that we are OK on the good days and then wham, it hits you…. This went on for a few cycles until a few months later, I took stock of where I was at, stopped working and literally stopped everything I was doing. I then tried to push myself a bit too hard, until I had a bad relapse end on May and been recovering ever since.

    I was bedbound for months, then housebound and now able to walk without my walking aid and rarely need my wheelchair. I did my own Christmas shopping walking in high heels, wrapped the presents and cooking Turky, Gammon and trifle for the big day in 2 days’ time. I will make a complete recovery, it is only a matter of time.

    So, you may be asking how did I do it. Well all the 7 steps Jow mentions, I went through. Includng: Diet, filtered water, nutritional supplements, herbal medicine, yoga, meditation, prayer, breathing exercises, stretches, keeping a 24 hour cycle with adequate sleep, limit TV and other stimuli, Pace, etc. The one thing that Joe mentions on this site and I implement into my path of recovery is discipline with the plan.

    I cannot stress this enough, rest first, sedate yourself if you cant switch off until you have learned how to meditate. Protect your brain – wear the eye mask and ear plugs even if you think you dont need them. Rest completely when you do rest. Then you have energy for other things. Schedule and plan every minute of the day, and stick to your plan. I dictated to others and did not let people tell me what and when to do anything. This was hard at first, but I got better at it. If on a particular day I could only have one 10 minute phone call, then that was all I allowed for that day. My attitude was and still is: “Tomorrow is another day”.

    So far I am trying to get back to work next year and well on my way to a complete recovery. I still stick to my daily routine of stretches, yoga, meditation, pacing etc. and now can notice changes on a weekly basis. I intend to stay on this path to a healthier lifestyle, joyfulness, calmness and lots of love and kindness.

    Have a Merry Christmas all.

    • Joe
      February 29, 2012 | 11:47 am

      Wow… Thank you a million times over for sharing your story Cheryl. Incredible. Good for you!

      It’s very impressive how quickly you put all the pieces together and nailed your recovery plan. It seems that the lack of clarity and confidence results in the condition dragging on for years for many people. Your journey shows how important being diligent truly is to your chances of recovery.

      Also very refreshing that there is another Doctor out there who really gets it. Any plans to get further into the treatment side of things?

      Thanks again for taking the time to share your inspirational adventure. The list of recoveries grows longer all the time!

      Joe

  2. bevan jeffery
    January 26, 2012 | 9:30 am

    brilliant! thank you. while sifting through endless medical, pseudo-medical theories, treatments,protocols, which can cloud your brain and sink your heart, its helpful to hear that people do actually recover! 7 or 8 years though! ach! dont think i can take that. two years is ample. cheers, bevan

    • Joe
      February 29, 2012 | 11:59 am

      Heya Bevan. I hear ya! Reading these stories was enough to motivate me big time. Stay committed and there’s a good chance you’ll get there yourself. Let me know when you do :)

  3. Jillian
    February 10, 2012 | 6:53 am

    When I got CFS in 2005, my internet research showed there was no cure and my doctor said I’d just have to live the best I could within my parameters. The worst thing I could’ve done was stop at that. My ideas were expanded by reading CFS forums and meeting a support group who were always examining new things to try. In the last few years many of those people have improved significantly; and I still have things I can try to improve, so kudos to you for including success stories. (One specialist explained that a CFS cure is hard for a doctor to tell because they only see patients who are sick; not those who are now fine!)

    • Joe
      February 29, 2012 | 12:00 pm

      Hi Jillian thanks for the message. Great to hear you’re feeling stronger, and you’re right, there are always more treatments to try no matter how much you may have done in the past. Keep us informed of what works for you! Best, Joe.

  4. […] Since then I've found a good website documenting lots of recovery stories. The website is: CFS/ME Recovery Stories. Yep, it’s possible. I would still love to hear from anyone else so please post a rely Many thanks […]

  5. […] I posted this question. Since then I found a great website I thought I'd share with you. Its called CFS/ME Recovery Stories. Yep, it’s possible. I would still love to hear from you all. so please post lots of replies Many thanks […]

  6. Some useful links
    February 25, 2012 | 2:53 pm

    […] anything you've found. Many thanks From Kevin http://www.altmedrev.com/publications/5/2/93.pdf CFS/ME Recovery Stories. Yep, it’s possible. Recovering from CFS and Fibromyalgia – Nutrition – Part V by Dr Jacob Teitelbaum | mFinds Freedom […]

  7. Emma
    April 14, 2012 | 1:19 am

    Hello Joe

    So pleased to have found your blog. All very inspiring and full of possibilities. I was diagnosed recently and my symptons are mild compared to many others. I’m currently playing with step 3, seeing what does and doesn’t work.  I too have tried Qi Gong and found it really energising. I tried Kundalini Yoga but that pummelled my breast muscles for three weeks so when I’m feeling brave I’ll try it again in a smaller dose as it is apparently good for the central nervous system. I like the idea of 10 mins every morning – I always think I have to do the whole hour long DVD but see now shorter times are the new way forward. I’m pretty much working with the theme of self healing through getting more in touch with my own energy. Apart the only drug i’m taking is aspirin for the head aches. Meditation/channeling are my main tools. Listening, locating stillness and true rest keep coming up as key in my journey. I’m researching and experimenting with Crystals too and had some amazing power ups to get me through studies.  I also recently attended a Brandon Bays seminar looking at emotional and physical healing through cell regeneration (The Journey Process) which i found very useful. Now that I’ve found your site with all these great resources I’m feeling armed and ready to hit step 4.  Thank you for sharing in such a positive, informative and fun way.
    Loads of light and laughter to us all.
    Emma

    • Joe
      April 14, 2012 | 4:20 pm

      Hiya Emma,
      Great to hear from you.

      Sounds like you’re on the right path no matter where it leads. It’s so endlessly fascinating to really try and find the stillness inside isn’t? We are such dynamic and vibrant creatures always humming and buzzing with different thoughts and feelings. But once I got a taste of the quietness I realised it was my new favourite cuisine! Sadly I’m still an apprentice chef in this regard but my cook book is slowly increasing :)

      Short bursts are definitely the way forward for me. As soon as I feel weary I stop the practice and always take my time building up any routine. Kundalini is full power but may be best approached when you’re a little stronger, although I read an interesting book by one of their head honchos called Meditation as Medication that was pretty spot on.
      Crystals and the Journey are both filled with healing potential. Have fun exploring them.
      Please add any insights to the website (as comments) as you go along. And be sure to tell us once you’re 100% better!

      Stay happy and true,

      Joe

  8. Bruce Tn
    April 25, 2013 | 3:06 pm

    While I am still struggling to recover after my last onset 3 months ago, I have tried few things that seemed to have helped, though not cured me:

    1. Vitamin, minerals cocktail: http://www.amazon.com/Enzymatic-Fatigued-Fantastic-Revitalization-25-Ounces/dp/B0013OUGRO/

    2. adrenal desiccated http://www.amazon.com/adrenal-desiccated-tablets-standard-process/dp/B001COZBYS/

    3. Iodine: http://www.amazon.com/J-CROWS%C2%AE-Lugols-Solution-Iodine-2%25/dp/B001AEFM9Y/

    4. Baking Soda + Apple cider vinegar therapy: http://www.earthclinic.com/CURES/chronic_fatigue_syndrome.html

    5. Going Gluten free

    I have tried a slew of other things that have not worked for me from DHEA, tons of other vitamins from big brands, Whey protien, changing diet, trying Paleo diet, and none of these thing have helped me significantly or at all.

    • Joe
      June 28, 2013 | 12:17 pm

      Hey Bruce,
      Thanks for the heads up on whats been working for you. Sounds like a pretty solid combination of treatments. Gluten free is a big commitment but pays off for a lot of people it seems. Now the trick will be staying disciplined and staying true to what works!
      Best of Luck. J

  9. Stephanie
    June 21, 2013 | 3:46 pm

    Although I didn’t have the help of a doctor, I was diagnosed at a walk-in clinic 1 year ago when my symptoms where the worst(have been suffering for a couple of years now), as my doctor didn’t believe in CFS. I took to the internet and did research and have actually come up with a similar reprimand for myself. Although I’m still battling some fatigue, nothing that can compare to how I felt last summer (2012), I can actually say this does work. I used to be in peak physical shape, running 5-10 km three to five days a week, and then it hit me. I was an over achiever myself, battling full time university, physical fitness, and working.

    Throughout my search for a cure most of what I found was shocking, almost everything I found was people complaining, telling me this would be a virtual death sentence. I refused to believe that and devised a plan for myself. I ate health, cut out a lot of sugar, caffeine, and started supplementing. I quickly saw things improve with in a couple of months. I also starting taking FibroSense because I was too diagnosed with Fibromyalgia. With in 1 month of doing this all of my pain was gone and my fatigue started getting better.

    Although its been a year since I started my journey to recovery I can say I’ve almost 100% beaten it. Although I don’t do that much physical activity as it tires me out, I still sleep a lot, I’m looking forward to the day that I can get my life fully back.

    • Joe
      June 28, 2013 | 12:21 pm

      Yeah right on Stephanie! Go Strong and True. Sounds like you’ll be back on the jogging trails before you know it…

  10. Jackie
    July 9, 2013 | 3:12 am

    Thank you for this. I developed CFS/ME after a prolonged bout of Human Parvo Virus. It was a descent into disability. I’ll spare you the details of my symptoms. I experienced, what I believe to be, an almost full recovery. It has taken 2 years of hard work and determination. I’ve relied on the care of an integrative medicine physician, supplementation, TCM, thyroid support, a strict gluten free, low-sugar, whole foods diet, exercise, stress management, meditation, visualization, and an unwavering positive attitude. What I’ve found is that I do relapse when I don’t take good care of myself, get really stressed, or when I get sick from a virus. The relapse symptoms are never as severe as those before my recovery, however, they are always unmistakable and a powerful wake-up call. Good luck to each of you on the road to recovery. Know that it recovery is possible. Believe it.

    • Joe
      July 19, 2013 | 6:02 pm

      Hi Jackie. Awesome story, thanks for adding it to the mix. The combination of treatments you used seems to be the trick, I’ve similar stories again and again. Essentially a total mind,body,soul overhaul with a good dose of stress alleviation thrown in, all under the care of an integrated practitioner. I bet it took alot of guts.

  11. Charles Horowitz, Ph.D.
    October 20, 2013 | 9:46 pm

    Hi, can you give me a Summary please, if you’ve read “CFS: 50 Personal Stories” by Alexandra Barton?–
    What common ingredients were in the 50 stories of CFS healings? Thanks, CH

    • Joe
      November 5, 2013 | 8:02 am

      Many different approaches are included Charles.
      The biggest common ingredient is a willingness to experiment and a strong sense of determination.

  12. Naveed
    January 27, 2014 | 4:26 pm

    I am suffering from CFS for the past 4 years, last year I found a way to recover and that was working well, until I had to relocate and again got crashed and at the bottom now, I followed the path told by Eckhart Tolle, to be present in now, and the water therapy to drink around 18 glasses of water, and that was working, but now again I am in a mess, as my relatives hate our family and keep us alone, that thinking and loneliness keeps all of our family members sad, especially me as I am the elder child, please suggest me..

    • Joe
      February 7, 2014 | 9:35 am

      Hey Naveed hope you’re feeling better. Have a look through the site my friend, there is plenty of information on offer. Perhaps go through the 7 Steps? All the best.

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  14. Parvez
    April 1, 2014 | 4:01 am

    Hi joe! i read your all seven stories and i am very inspire with them.l have a cfs since 2011 When i am in 10Th standard in school.now i am on This 5 May 2014 18 years old and there is the normal progress in my health.i an live in india and i want help of doctor and i also try to get the help of doctor but many doctor say’s me that there is not any illness like a cfs.in india i dident think that anyone help me.i want your help can you contact with on my email id please!!!

    • Arif
      August 21, 2014 | 12:49 pm

      Hey Parvez I am also from India and I get it in 2010 and maybe recovering contact me on farhanmuzzumil@gmail.com
      …..

  15. Parvez
    April 1, 2014 | 4:02 am

    Hi joe! i read your all seven stories and i am very inspire with them.l have a cfs since 2011 When i am in 10Th standard in school.now i am on This 5 May 2014 18 years old and there is the normal progress in my health.i an live in india and i want help of doctor and i also try to get the help of doctor but many doctor say’s me that there is not any illness like a cfs.in Here i dident think that anyone help me.i want your help can you contact with on my email id please!!

  16. Tim
    April 9, 2014 | 10:13 am

    Hi joe I had testicular cancer followed by severe skin problems (pscerisus) which affected my whole body10years ago,since then I have struggled more and more with fatigue and all sorts off other problems until last year I was diagnosed with me ,I work nights so sleep twice a day I have cut down from working 5days a week to 3 to no affect so now I have taken three months out to see if it will help,after 1month no change .my problem is that I don’t seem to be as bad as most people i sleep ok I don’t have any pain and I am not bed ridden butt I do feel feel very tired with muscle stiffnes woozy head stomach problems I could go on and on.i don’t no wether to try small works or exercise or completely rest until im feeling a lot better . Basically I don’t no where to start.

    • Joe
      May 1, 2014 | 10:07 am

      Hey Jayme. I would start with the 7 Steps I talk about. Get educated, find a practitioner to work with and experiment carefully with different approaches. You will find your way!

  17. Sharon
    May 14, 2014 | 8:43 pm

    Hi,
    I really wanted to share the most successful part of my recovery so that others can look into it too if nothing else is working for them.
    Through my CFS it seems I developed food chemical intolerances which I found hard to believe as these foods hadnt caused me any problems prior to CFS and are considered very healthy eg avocado, tomatoes, citrus, bananas broccoli and the list goes on! I saw a dietician after no real luck with my Doc and specialist in CFS and doing my own B12 Injections for 2 years and numerous supplements with no pattern in good or bad days. I could go on forever with all my symptoms but will spare you! You all know the drill… Anyway, the dietician put me on an elimination diet which wasnt easy or fun, especially because I love food, but I gradually started to feel better and then felt really good. Turns out I was sensitive to amines and glutamates, naturally occurring food chemicals – wick I had never heard of! After completing the elim diet I have continued to avoid these foods along with gluten and lactose and my life has dramatically changed for the BETTER!! :-) I have started studying and have just joined the gym again, doing body balance, yoga and treadmill walking for now and will be looking for work when my son starts school next year. My biggest wish is that this information helps someone else, I can’t tell you how shocked I was that foods were causing my CFS symptoms, I don’t think they were the initial cause but they were definitely the key to my recovery in the end. The elimination diet is from the Allergy Unit in the Prince Alfred Hospital so is very reputable.
    If anyone would like any more information about my story please don’t hesitate to ask. I am left wondering, how do Dr’s and a CFS specialist not know about this possibility??
    Best wishes to you all,
    Sharon x

    • Joe
      August 8, 2014 | 7:42 pm

      Heya Sharon! Thanks for the post, awesome to hear you found your key to getting better. I’ve been meaning to do an elimination diet for ages but never found the time. Its something I will revisit. How exciting to be back at the gym and using your brain to study! I’m sure this information will help others on their journey. Thanks for taking the time to share it.

  18. rachel
    May 24, 2014 | 7:54 pm

    Lovely stories to read.I hope people really believe them. I have been lucky,Met some supportive people who’ve helped loads.I got ME in 2005 after dentist put a filling in a tooth abcess, abcess popped & I got what was initially called post viral then became ME.At worst was 6 3/4 stone although eating two cooked meals a day,then had carers three times a day for 5 years….commode in sitting room,slept on bed setee didn’t go out for3 1/2 years.Had fantastic acupuncturist S MacAllan (Crewe)’s support also did Jan Williams journey to wellness course in half hour sessions over the phone..and bingo,ok a slow bingo but great,I am now back driving,swimming outdoors (yes even this year!)and have a very part-time job cleaning! It was worth the perseverence.I do daily meditation and a form of tai chi’butterfly’ which only takes 5-10 mins and a little yoga. Not back to what I was before I became ill but very good.All The best with the journey everyone.If I can do it so can You!xx

    • Joe
      August 8, 2014 | 7:36 pm

      Wow what a super inspiring story Rachel! Good for you taking things back into your own hands. I’m smiling from ear to ear. Tomorrow is a new day!

  19. Joan Boselli
    June 11, 2014 | 10:14 pm

    Hi-I am so happy to see these recovery stories, & I will dive into the methodologies for recovery. I was diagnosed w/CFS a year ago. I am seeing a physician who treats many people with the same symptoms. Before receiving weekly vitamin infusions at this clinic, I was at 30% functioning. I now am at 60%, but have not seen any steady improvrment for several months, although we are trying different modalities.

    My problem is, I have to work. I need considerable more savings for retirement, and have no family or spouse to fall back on 0(I turned 60 this year). The job is demanding and requires a considerable amount of time and energy. Is it possible to recover under these circumstances? I have gven much up as my job needs to come first. Before becoming sick (triggered by aa virus which was preeceded by years of stress), i was a runner, health and of average energy level.

    I am happy to hear anyones comments or suggestions. I am most greatful for these stories, as I have recently become depressed over all of this & have begun to lose hope for recovery.

    Thank you!

    • Joe
      August 8, 2014 | 7:33 pm

      Hey Joan. It is absolutely possible that you recover your health. I have heard stories from people of all ages getting better, often after many years of being ill. Its important to balance your finances with your recovery, talk to your boss about more flexible hours and maybe even working from home one day a week. I know its tough working when you are unwell but its empowering to stay employed and maintain an income if possible. Good luck and stay strong, tomorrow can be another day in the right direction.

  20. Joe
    July 12, 2014 | 1:05 am

    I made my way back to health by getting an accurate assessment of the damage to my body (full viral and bacterial testing for EBV, HHV 6, CMV, Parvovirus B19, c. Pneumonia, Lyme etc.) and thyroid panel (TSH, T4, T3, etc.) then my doctor and I ticked off these infections one by one. I am still not 100% by any means but I am on the road to recovery.

    -12 months of Valcyte (this was the biggest game changer)
    -T3 supplementation
    -Antibiotics for secondary infections associated with treatment
    -Sub Q GG shots
    -metabolic supplements
    -immune supplements including proper probiotics
    -sleep hygiene
    -pacing
    -Stone Age diet

    Meditation didn’t work for me. This is not an illness that exists solely in your head. Anyone who claims they can cure you using mindfulness is bullsh*tting you. This is a very physical illness, one that requires western medicine and proper symptom management.

    The key is finding the right doctor who believes in you, wants you to get better and will treat you as an individual with specific needs according to your specific situation. I say this because many alternative doctors might offer you a blanket diagnosis of adrenal fatigue, not aware of modern protocols and treatments that include serious drugs that work if you fall into the right subset. Don’t let anyone bully you around. Demand your doctor’s attention. Make sure they regularly test your blood. Speak up about new symptoms at every appointment. It took me over 10 years to get a proper diagnosis, 4 of which were acute. 1.5 to begin real healing. Getting someone to treat you as an individual is what matters most.

    Also, reach out to friends. It’s easy to retreat and be angry at the world. Knowing people are there to back you up is huge.

  21. Johnny de Haan
    August 25, 2014 | 12:04 am

    How I cured my Chronic Fatigue Syndrome virtually overnight:

    Let me just say I’m a 38 yr old male, I been suffering from CFIDS for almost 15 yrs now. This is a very frustrating disease. You go through periods where you’ll feel well, then you’ll go out and play some sports, and the next day you are so exhausted you cannot get out of bed.

    So how did I cure myself?? Well, it wasnt by going to doctors, although they were helpful here and there. But to cure yourself you most likely wont get it from a pharma script, at least that was the case with me. You need it from a natural source.

    Every CFIDS is different, so I can’t guarantee this will work for everyone. If you have Lyme disease this may not work. But it might help some people who are going through the same thing I was going.

    The main reason why people suffer from CFIDS is because their hormonal system is out of whack. Hormone comes from the Greek term meaning “to spur on”. If your body isnt producing hormones at an optimum level, you will most likely have very little energy and feel tired all the time.

    The master hormone gland in your body is the Hypothalamus gland. It controls the pituitary, adrenal, thyroid and all other sex hormone glands. Anyone who has CFIDS will tell you besides feeling tired all the time, they also probably dont feel like having sex very much.

    So how do you fix your hypothalamus gland if its not functioning properly??! Real simple answer. You take a hypothalamus glandular capsule or pill once or twice a day. There are only a handful companies who sell hypothalamus glands in North-America. They should come in strengths of 500 mg. You take 1 or 2 of these a day, and within hours you’ll start to feel your energy building up again.

    To get the full benefit you need to take it for a few months. Then when your body has recovered you can gradually wean yourself off by cutting capsules in half, or even down to 1/3 a capsule.

    You can also after a few weeks add adrenal glandulars, pituitary and/or thyroid glandulars to see if that makes a difference. I did notice my recovery went a bit quicker when I added the adrenal glandular.

    All these glandulars are available on “google shopping” for a reasonable price.

    One of the theories out there why so many women get CFIDS is because in some women the contraceptive pill can throw your hypothalamus out of whack if you take the pill for a long time. But that is just a theory so far, no scientific proof.

    I got CFS after taking cortisone pills for a skin problem I had. It even says right on the official drugs.com website that cortisone can depress the hypothalamus-pituitary-adrenal axis. In my case that axis never quite returned to normal, and the only way to fix it was by taking the glandular pills

    See here: http://www.drugs.com/sfx/hydrocortisone-side-effects.html

    Long-term effects have included hypothalamus-pituitary-adrenal activity suppression, Cushingoid appearance, hirsutism or virilism, impotence, menstrual irregularities, peptic ulcer disease, cataracts and increased intraocular pressure/glaucoma, myopathy, osteoporosis, and vertebral compression fractures

    15 years I suffered with this disease. I’m glad I finally kicked it to the curb

    • Joe
      August 25, 2014 | 12:28 pm

      Great to hear Johnny. As simple as for you as couple of pills in end? That’s great.
      I’ve never heard of hypothalamus gland pills. What are the brand of pills you bought?

  22. Johnny de Haan
    August 26, 2014 | 9:25 am

    I got these from Nutricology:

    http://www.iherb.com/Nutricology-Hypothalamus-100-Veggie-Caps/16690#p=1&oos=1&disc=0&lc=en-US&w=hypothalamus&rc=30&sr=null&ic=1

    They come in 500mg strength. I found for me I didnt need 500mg, so I bought gelatin capsules and divided their capsules into two 250mg capsules and took that twice a day. Once after breakfast and another capsule after dinner.

    My CFS went away in a couple of days. But my CFS wasnt THAT bad, I could still work a few days of the week (although not the full 5 days, I was too sick for that).

    For people that are practically bedridden you might have to take it for a few months to be completely cured. YMMV applies here.

    I can’t guarantee this will work on everyone of course, but its worth a try

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About
Welcome! I'm Joe and my vision is to empower people with the knowledge they need to take control of their health. I was diagnosed with Chronic Fatigue Syndrome (CFS/ME) in 2003 and recently added Lyme disease to that diagnosis in 2012. I'm on a path to recovery and I invite you to join me..... P.S. It's best to never take anything I say too seriously. In fact I reckon it's best to never take anything too seriously!